Health information systems for clients with mild intellectual and developmental disability: a framework

Persons with intellectual and developmental disability (IDD) remain among the most vulnerable members of society and frequently face numerous barriers accessing healthcare services. Following our recent literature review identifying needs for persons with IDD, we propose that frameworks can be useful to identify the key components of person-centred health information. These will ultimately support the building of relevant Health Information Systems. This paper presents the initial development and content of the Person-Centred Health Information framework (PCHI) developed to support persons with mild IDD. PCHI is based on the Information-Motivation-Behavioral skills (IMB) model and its use in the design and development of Health Information Systems has the potential to improve health access and outcomes for persons with mild IDD.