Exploring how patients, carers and members of the public are recruited to advisory boards, groups and panels as partners in public and patient involved health research: a scoping review protocol
Introduction Engaging patients, carers and members of the public in health research has become widely recognised as an important approach for bridging the gap between research, and health and social care by increasing the relevance of research for those who benefit from its findings. Specific approaches to engagement vary, but commonly include advisory boards, groups or patient panels that are active throughout all stages of research. The breadth of and optimal strategies for recruiting patients, carers and members of the public to such boards, groups or panels remains unclear. The objective of this manuscript is to identify the breadth of and optimal strategies used to recruit patients, carers and members of the public to advisory boards, groups or panels, within public and patient involvement (PPI) research.
Methods and analysis This review follows the scoping review framework by Peters et al, an elaboration on the framework by Arksey and O’Malley. The search strategy was co-developed among the research team, PPI research experts and a faculty librarian. The review will take place between July 2021 and June 2022. In July and August 2021, eight electronic databases, MEDLINE (PubMed), MEDLINE (OVID), Embase, CINAHL, PsychINFO, Scopus, Web of Science and Cochrane Library, will be explored to capture all available literature. Two independent reviewers will screen articles by title and abstract and then at full text based on predetermined criteria. The data will be presented in a tabular format with a narrative summary discussing how the research findings relate to the overarching research question. A thematic analysis will also be completed using qualitative description, identifying key themes and gaps in the literature.
Ethics and dissemination Ethics is not required for this review. We aim to disseminate the information gathered through presentations at academic conferences, peer-reviewed publications and consultations with lay audiences.
History
Publication
BMJ Open 2022;12: e059048Publisher
BMJ Publishing GroupOther Funding information
EK is supported by a UL School of Medicine Student Research Award. MG is supported by a UL GEMS-10 Scholarship as well as partial funding from the Canadian Institutes of Health Research funded IKT Research Network (#FDN-143237).Also affiliated with
- Health Research Institute (HRI)
Sustainable development goals
- (3) Good Health and Well-being
External identifier
Department or School
- School of Medicine