Families' perceptions of the contribution of intellectual disability clinical nurse specialists in Ireland

Aim and objectives To explore families’ perceptions of the contribution of clinical nurse specialists in intellectual disability nursing in Ireland. Background Clinical nurse specialists roles have developed over the years and are seen as complex and multifaceted, causing confusion, frustration and controversy. 2001 saw the formal introduction of clinical nurse specialists roles in Ireland across nursing including intellectual disability. Design A exploratory qualitative approach using semistructured one‐to‐one interviews with 10 family members regarding their perceptions of the clinical nurse specialists in intellectual disability. Methods Data were audio‐recorded, transcribed and analysed using Burnard's framework. Ethical approval was gained and access granted by service providers. Findings The study highlights that intellectual disability clinical nurse specialists contribute and support care deliver across a range of areas, including personal caring, supporting and empowering families, liaison, education and leadership Conclusions Clinical nurse specialists have an important role and contribution in supporting families and clients, and Ireland is in a unique position to develop knowledge regarding specialist care for people with intellectual disability that can be shared nationally and internationally. Relevance to clinical practice Ireland is in a unique position to develop knowledge regarding specialist care for people with intellectual disability that can be shared and adapted by other healthcare professionals in other countries that do not have a specialised intellectual disability nurses. What does this paper contribute to the wider global clinical community? •Intellectual disability clinical nurse specialists (CNSs) fulfil an essential role in supporting families, clients and service provision. •Families recognise the contribution of intellectual disability CNSs but identify short comings when transitioning between services. •Intellectual disability CNSs play a vital role in advocating for and coordinating services for families.