Temporality and the carer’s experience in the narrative ecology of illness:Susan Sontag’s dying in photography and prose

This paper joins a discussion about the representational dissonance and commemorative ethics of two self-referential works that engage with Susan Sontag’s2004 death from Myelodysplastic Syndrome: Annie Leibovitz’s A Photographer’s Life 1990–2005 (2006) and David Rieff’s Swimming in a Sea of Death: A Son’s Memoir (2008). Instead of approaching these two texts as testimonial accounts measured by standards of reliability and grace, this paper considers how the temporal dissonance produced by an incurable cancer diagnosis thwarts questions of personhood and ethical intention in Leibovitz’s photography and Rieff ’s prose. By contextualizing these works as the caregivers’ experience of Sontag’s illness, this paper reads them as attempts at gauging two distinct temporal perspectives that confound identification—those of living through and of remembering terminal time.