posted on 2019-11-12, 14:41authored byOrla T. Muldoon, Stephen R. Walsh, Mariah Curtin, Elaine Louise Kinsella
Brain injury is a hidden phenomenon in our society. Rarely, if ever, do we
get to hear the voice of the person living with ABI. This report, using a
research framework, lifts the lid and lets us gain an insight into what life
is like for people with a brain injury. It provides a valuable insight into the
lived experience, illustrates the challenges people face with life altering,
traumatic change and how they strive to live a meaningful life of their own
choosing in the aftermath. It illuminates, in very clear terms, the barriers
faced, the lack of services that people contend with and difficulties
experienced in trying to get access to services.
While the report captures the lived experience of people with brain injury, it
also clearly demonstrates the massive contribution that families make, both
in the short and long term. It tells stories of families who never gave up on
their loved one and the extraordinary determination on their part to make
life better. There is also a strong message of hope from the research that
people living with brain injury display the ability to adapt and be resilient
even when faced with such adversity.
This is essential reading for all of us involved in the brain injury world. It is
essential reading for health policy makers who are framing policy on neurorehabilitation.
It is essential reading for our elected representatives who
need to hear these stories and understand what people with ABI and their
families deserve in their decisions regarding the allocation of resources.
Thank you to Professor Orla Muldoon and the team of researchers who
conducted the research. It is a really valuable contribution to brain injury
discourse in Ireland.