Patients’, family members’ and healthcare practitioners’experiences of Stevens–Johnson syndrome and toxic epidermal necrolysis: a qualitative descriptive study using emotional touchpoints

Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) are devastating conditions resulting from a severe immune‐mediated mucocutaneous reaction which normally occurs as a result of medication.1 In the acute phase, the patient presents with a febrile illness, followed by skin and mucous membrane necrosis and detachment.2 The patient can quickly become critically ill and is treated as a medical emergency. There may be long‐lasting psychological effects on patients and their significant others.3 However, there is a dearth of research on the experiences of patients with SJS/TEN, those close to them and healthcare practitioners (HCPs) providing care.