posted on 2021-03-09, 09:44authored byAudrey L’Espérance, Nadia O'Brien, Alexandre Grégoire, Julia Abelson, Carolyn Canfield, Claudio Del Grande, Maman Joyce Dogba, Carol Fancott, Mary Anne Levasseur, Christine Loignon, Annette Majnemer, Marie-Pascale Pomey, Jananee Rasiah, Jon Salsberg, Maria Santana, Marie-Claude Tremblay, Robin Urquhart, Antoine Boivin
Background: Patient and public engagement (PPE) in research is growing internationally, and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented Research has generated national momentum and opportunities for greater PPE in research and health-system transformation. As is the case with most countries, the
Canadian research community lacks a common evaluation framework for PPE, thus limiting our capacity to ensure integrity between principles and practices, learn across projects, identify common areas for improvement, and assess the impacts of engagement.
Objective: This project aims to build a national adaptable framework for the evaluation of PPE in research, by: 1. Building consensus on common evaluation criteria and indicators for PPE in research; 2. Defining recommendations to implement and adapt the framework to specific populations.